This site exists because healthcare software should be released exclusively under the Gnu General Public License. The Gnu General Public License (or GPL) exists because Richard Stallman felt that software should not be used to control people. The Gnu General Public License is an attempt to write a license that explicitly prevents one person from controlling another with software. Stallman’s arguments are especially compelling for software in medicine. This credo begins where Stallman’s arguments ends so reading his work is recommended. Stallmans writings are available from http://fsf.org, or in his book “Free as in Freedom”.
Proprietary software licenses are used to exert inappropriate control over people. As a result, these proprietary software licenses are immoral. There are obviously levels of immorality in proprietary software licenses. Any proprietary software license is immoral, but some instances of it are worse than others. Stallman and his organization, the Free Software Foundation, have certain software projects that they consider critical to the overall freedom of software users, such as operating system software.
Focusing on certain types of software is justified because some software licenses have different implications in different areas. For instance proprietary software in video games is wrong, but not very relevant. Whether to use the Microsoft XBOX in not really an important issue. However, Microsoft's operating system should be avoided whenever possible in favor of operating systems like GNU/Linux which are GPL licensed. As this credo continues, the reasons for these distinctions will become more obvious.
Just like operating systems it is critical that medical software be released under the GPL. Releasing medical software under a proprietary license is very wrong, like lying in court.. or to your mother... There are always consequences when a proprietary (non-GPL) software is used in the place of GPL software. In medicine, these consequences mean lost lives and needless suffering. To understand why this is true, we must examine how exactly proprietary licenses are so damaging. We must understand the full implications of the proprietary licenses.
A freedom that the GPL provides that is denied by proprietary licenses is unfettered access to the source code for the medical application. Proprietary licenses dictate that the right to modify the source code is reserved to the software vendor. The long term result of denying medical institutions access to the source code for medical applications is that medical providers are denied access to patient data. Some of this patient data is critical, and when it is lost it can result in tragedy for the patient.
Without full access to the source code the medical institution is prevented from improving, maintaining or simply changing the software in any way that the software vendor does not approve of. Only the software vendor is allowed to make changes, and the vendor can arbitrarily set the prices for these changes, or simply refuse to make them.
Normally companies are prevented from abusing their customers by the free market. If you get frustrated with your telephone company you fire them and hire another one. The fact that you can do this keeps your telephone company from abusing your relationship. However these economic forces only impact proprietary medical software vendors before a sale is made. Often a proprietary medical software vendor will sell the software at a very reasonable cost. However, years later, the vendor will change the costs of upgrades or support. Because these upgrades include critical bugfixes, or federally mandated changes, institutions are forced to upgrade at phenomenal costs. This money, used simply to maintain their current functionality, could have been spent improving healthcare.
The software vendor can make such arbitrary demands because the medical institution cannot migrate to a new system. Even if a new medical application to replace an existing system is economical, the current system often contains critical patient data, that would cost a fortune to migrate to the new system. Because they cannot afford to migrate, it is often impossible for medical institutions to refuse the demands of their software vendors. Even then, the medical institutions stuck in a bad vendor relationship are the lucky ones, some are abandoned by the vendor altogether.
Because the license prevents anyone but the vendor access to the source code, only the original software vendor can support the software. Typical software licenses provide no rights for the customer in the event that the software vendor is bought-out, or in the case that the software vendor goes bankrupt. These two events represent massive changes in the way the vendor supports the software. The most terrifying result of this is abandonware, which happens when a software company refuses to or becomes incapable of supporting the software. When a video game is abandoned people can just stop playing it, or ignore any problems. When Electronic Health Record software is abandoned, a system containing life critical data regarding potentially millions of patients becomes incapacitated?
These problems, collectively, can be referred to as “vendor lock-in”. The software license traps the medical institution, marrying it to the software vendor for better or worse, usually worse. Please understand that these problems are not theoretical! They are real world issues effecting thousands of medical institutions. This site already documents multiple instances of proprietary health software vendors abandoning software that impacted thousands of health practices.
Generally this site will be used to promote the use of the Gnu General Public License in medical or health-related software. Essays discussing specific problems related to intellectual property (a misnomer: it is neither intellectual nor property) in medical software will be published here as well as open letters to various players in the medical IT field. Specific issues created by proprietary software licenses in medicine will be documented here. The site will be generally used to provoke discussion, thought, and hopefully, change.
This site exists to promote software using the General Public License in the medical software arena. This site is especially concerned with medical practice management software, hospital management software, and electronic health records (or electronic medical records)
This bias is intentional. Medical Practice Management Software and electronic medical records (EHR) impact modern health care providers and patients on a continual basis. If good software is going to make a difference for everyone in medicine, this is where to start.
Wherever possible this site will avoid the terms free practice management system or open source practice management system, along with open source EHR, etc etc... This terms are confusing to anyone who does not understand the Open Source vs. Free Software debate. Since this site is aimed at medical personnel and not at technologists the site will strictly discuss only the Gnu General Public License (GPL).
Eventually this site will also list where you can get GPL electronic health records and GPL practice management systems. Eventually it will also host reviews of different packages.